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» Overview
» Participants
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 Adrienne Asch, PhD, MSEdward and Robin Milstein Professor of Bioethics & Director Professor of Epidemiology and Population Health Albert Einstein College of Medicine Yeshiva University Adrienne Asch is Director of The Center for Ethics at Yeshiva University, Edward and Robin Milstein Professor of Bioethics at the University’s Wurzweiler School of Social Work, and professor of epidemiology and population health at Albert Einstein College of Medicine. Her work focuses on the ethical, political, psychological, and social implications of human reproduction and the family. She has authored numerous articles and book chapters, and is the co-editor of Prenatal Testing and Disability Rights and The Double-Edged Helix: Social Implications of Genetics in a Diverse Society. She received her doctorate in social psychology from Columbia University, was a member of the board of the American Society for Bioethics and Humanities, the Clinton Task Force on Health Care Reform, and the Ethical, Legal, and Social Implications Policy Planning Group of the National Human Genome Research Institute. She is a board member of the Society of Jewish Ethics, a fellow at the Hastings Center, and a member of the New York State Task Force on Life and the Law. |
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Judith Daar, JDProfessor of Law Whittier Law School Clinical Professor of Medicine University of California Irvine College of Medicine Judith Daar is currently a Visiting Professor of Law at UCLA School of Law and a Clinical Professor of Medicine at the University of California Irvine College of Medicine. She is regularly a Professor of Law at Whittier Law School, where she has taught since 1990. Professor Daar’s course coverage includes classes in Health Law, Bioethics, Reproductive Technologies, Property, and Wills & Trusts. In 2005, she became Chair of the Association of American Law School’s Section on Law, Medicine and Health Care, and in 2006 she was named to the Board of Directors of the American Society of Law, Medicine & Ethics. In 2007, she was appointed to the American Society for Reproductive Medicine, Committee on Informed Consent in ART. She is a member of the UCI Medical Center Medical Ethics Committee, where she serves on the Bioethics Consultation Team. Since 1986, Professor Daar has been the chair of the Los Angeles County Bar Association Bioethics Committee, Subcommittee on Reproductive Issues. She has also served as a member of the Harbor-UCLA Hospital Institutional Review Board, and the ABA Coordinating Group on Bioethics. Professor Daar has lectured extensively in the field of reproductive medicine, including giving testimony to the National Academies of Science, Committee on Science, Technology, and Law in March 2007. Her scholarship focuses in the area of reproductive technologies where she has authored numerous articles on topics including stem cell research, human cloning, frozen embryo disputes, and the regulation of reproductive medicine. Her recent book, Reproductive Technologies and the Law, was published in January 2006. Her forthcoming book, The New Eugenics: Selective Breeding in an Era of Reproductive Medicine, will be published by Yale University Press in 2009. She graduated cum laude from Georgetown University, Georgetown Law, and graduated from University of Michigan. |
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 Clare Dunsford, Ph.D.Associate Dean College of Arts & Sciences Boston College Clare Dunsford is the author of the recently published memoir, Spelling Love with an X: A Mother, A Son, and the Gene That Binds Them (Beacon Press, 2007) which explores her life as the mother of a son with fragile X syndrome as well as the carrier of a new genetic identity. Chapters from Spelling Love with an X have appeared in X Stories: The Personal Side of Fragile X Syndrome (Flying Trout Press) and in the winter 2006 issue of The Kenyon Review, an issue dedicated to the Human Genome Project. Another chapter will appear in an anthology due out in spring 2008 from Beacon Press, Love You to Pieces: Creative Writers on Raising a Child with Special Needs. Dunsford has read from her book at a plenary session of parents and scientists at the National Fragile X Foundation conference in 2002 and has also given a presentation at the Pacific Center for Technology and Culture at the University of Victoria in 2004. An associate dean in the College of Arts & Sciences at Boston College since 1999, Dunsford was previously an adjunct lecturer in English at Harvard University and Boston College. She received her B.A. from St. Louis University and her Ph.D. in English from Boston University. |
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Paul A. Lombardo, PhD, JDProfessor of Law Georgia State University Center for Law, Health and Society Paul A. Lombardo is Professor of Law at Georgia State University’s College of Law in Atlanta, in the Center for Law, Health and Society. He teaches courses in Genetics and the Law, the History of Bioethics, Mental Health Law and the Legal Regulation of Human Research. He is coeditor of Fletcher’s Clinical Ethics, (3rd ed.) and his book Three Generations, No Imbeciles: Eugenics, the Supreme Court and Buck v. Bell, will be published by Johns Hopkins University Press in 2008. From 1990 until 2006 he served on the faculty of the Schools of Law and Medicine at the University of Virginia, where some years ago, he earned both his Ph.D. and J.D. degrees. |
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Janet Malek, PhDAssistant Professor Department of Medical Humanities Brody School of Medicine East Carolina University Janet Malek is an Assistant Professor in the Department of Medical Humanities at the Brody School of Medicine at East Carolina University, where she teaches courses in medical ethics, philosophy and medicine, and research ethics. She received her bachelor’s degree from Duke University and her doctorate in philosophy from Rice University. Her dissertation, The Decision to Conceive and the Concept of Harm, explored the possibility that future children can be harmed by their parents’ conception decisions and the parental obligations that may be generated by that possibility of harm. Dr. Malek currently writes on ethical issues related to reproduction, the use of assisted reproductive technologies, and the use of genetic technologies. She has also worked on projects concerning the ethics of genetic research, scientific integrity, and ethical standards for review of research with human subjects. |
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 Elizabeth A Pendo, JDVisiting Professor of Law (2007-08) Center for Health Law Studies Saint Louis University School of Law Elizabeth Pendo is visiting from St. Thomas University School of Law in Miami, Florida. Professor Pendo teaches courses in disability law, health law and bioethics, employee benefits law and civil procedure. She has also taught health law and bioethics-related courses in the Masters of Science in Health Law Program at Nova Southeastern University Shepard Broad Law Center, and at The Royal College University Escorial Maria Cristina in Spain. She writes in the areas of health insurance law and policy, the intersection of issues of gender and disability with the health insurance and health care systems, and the litigation of insurance, employment and discrimination disputes in the federal courts. She has also served as appointed member and elected Chair of the Florida Agency for Health Care Administration’s Managed Care Ombudsman Committee, investigating and resolving health care consumer complaints regarding services received through managed care programs. She graduated from University of California, Berkeley, Boalt Hall School of Law in 1993, and graduated magna cum laude from University of California, Los Angeles in 1990. |
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| Susan Stefan, JD Senior Staff Attorney Center for Public Representation Newton, Massachusetts Susan Stefan has been a senior staff attorney at the Center for Public Representation in Newton, Massachusetts, since 2001. She has written three books and numerous articles about legal and policy issues involving people with psychiatric disabilities, including a number of articles and chapters relating to sexuality and reproductive and parental rights of women with psychiatric disabilities. Her most recent book is Emergency Department Treatment of People with Psychiatric Disabilities: Policy Issues and Legal Requirements (Oxford University Press 2006). Prior to working for the Center for Public Representation, Ms. Stefan was a professor at the University of Miami School of Law, where she taught disability law and mental health law and litigated a number of cases applying the Americans with Disabilities Act to the rights of people with psychiatric disabilities. She has received numerous advocacy and teaching awards and has testified as an expert witness in several federal court cases. She graduated from Stanford Law School in 1984, received a Master’s Degree from Cambridge University in England in 1981, and graduated magna cum laude from Princeton University in 1980. |
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